Darkness Falls
Darkness falls
shoving my precious blues and violets
down the black hole of depression.
I no longer remember
how to smile
or create
or spar.
I wish to disappear
into the darkness
until the light returns.
“For the Truth Shall Set Ye Free”
I first remember things going wrong at age 5.
I am standing in the corner of the bedroom with my mother beside my brother’s crib. She is telling me I am cold and selfish, like my father’s mother whom she hates. I now think she hates me. She tells me I will wind up all alone.
It is just after the births of my brother and sister, only 11 months apart, and my 25-year-old mother, is totally overwhelmed. My brother is the apple of her eye, with Mom’s dark coloring and the looks of her adored Sicilian born-father. My sister is Daddy’s little girl. I remember feeling all alone, and being cold and hard at that age, confiding only in my stuffed lion, Leo. Many, many years later I come to see this cold, hard me as a dissociated self. Many years later my mother apologizes to me. And I apologize to her.
I set out on a life-long struggle to be different from my father’s mother, doing everything to try to be warm and loving like my mother’s Italian family. I fail. With acute stage fright most of the time, I cannot initiate a smile, nor greet people. The most basic social skills are lost to me, much to the chagrin of my parents. Often I cannot respond to people. At times I cannot organize my thoughts well enough to speak. I feel evil and selfish. I want to fit in and can’t. I want to pass for normal and don’t. I want to have a family and never will. I want to find love and it will take me decades to do so.
The “defensive personality” serves me well, covering up many, but not all, of my autistic symptoms. I live dissociated from many of my numerous fears.
My story begins when I break down. My fiancé, Sundra, goes back to Sri Lanka. I change library jobs from a relatively comfortable clerical position in a small library to a position cataloging art books in a huge office. The new job is in a giant room with three different departments and about 40 employees of all ages and ethnicities. There are no cubicles or dividers so everyone can see and hear everyone else. It is as gossip-ridden as a small town. There is no privacy and there are fluorescent lights. It is all too much. But it is here I meet Danielle who is to change my life forever and, later, Jimmy, who becomes my husband. My journey begins when my autistic shell breaks, at age 28, when the “superficial personality”, the dissociated me, falls apart. I seek therapy and am diagnosed with Bipolar Disorder. Not until thirty years later do I find out I have Asperger’s Syndrome, a mild form of Autistic Spectrum Disorder, as well.
I write my story as a message of hope to all those who are as lost as I was, to those who think, as I did, that they cannot find love. I open my heart to help others avoid the suffering I went through and caused. I nearly lost my job and my mind pursuing love. I hurt other people. I could have been seen as a stalker due to my typical Aspie approach to a romantic interest. Love threw me over the brink of sanity and made me psychotic at times. I didn’t know I was Bipolar and my psychiatrist didn’t know I had Asperger’s syndrome.
Finally, I write this book to psychiatrists and other therapists that they may understand their patients who have the same issues and delusions.
From the Prologue to Eye-locks and Other Fearsome Things:
Mourning Mania and the Only Path to Take
I once had the fire, raging within, unchecked and veering out of control. Now it glows like a pile of burning embers I sift through periodically, as if panning for gold. Once a cauldron of creativity, ideas bubbled around inside my head at break-neck speed, spinning like a troop of whirling dervishes. But far more valuable, the flames fueled what can only be called the presence of God within, being at one with Jesus. Such beautiful states were sparked by the same fire that also torched a living hell within—for such were the cycles of my mania and depression.
The danger of mania drew nigh when the flames scorched what was left of my reason and my perception of the world, sending me into a morphing reality where I could no longer tell what was real and what wasn’t. This alternative/alternating consciousness clouded my vision as I ran up against the walls of mania and depression, like a little girl, lost in a house of mirrors, not knowing how far she was from the light of day.
To say I could not function is a huge understatement and was a by-product of my living in another dimension. I remember once not being able to respond to a store clerk simply asking if he could help me. That question had always been troublesome for my Aspie nature, but in a Bipolar mania I was unable to open my mouth to speak, and this sent me running out the doors of the store, seeking a hiding place for my tears. One of the many times I lost my speech.
To make matters worse the fire would rage and then die out suddenly and completely, leaving me like a trapeze artist suddenly finding there was no safety net below. Despair was total—no creative juices, no God and a mind replete with self-loathing in a totally black, bleak void. I was a dead tree in the depths of winter, with decaying stumps where branches used to be. There was no future and I had no access to any of the goodness of things past.
Alternating between these two ways of being in the world was exhausting, confusing and totally disorienting. And then I had a breakdown and psychosis spewed forth from the detritus of my mind. I was reborn into a the world that was totally overwhelming and hellishly over-stimulating. I had to learn the lessons of childhood all over again, starting from square one. This time with professional help and MEDICATION! Not the self-medication of alcohol. Psych meds. Heavy duty ones of the Thorazine variety. Anti-psychotics.
At first, it seemed I was now wrapped the “cotton-wool” Virginia Woolf described as her moments of “non-being.” My cotton-wool was more of a mental straight-jacket. The medication had toned down the world outside and inside as if I were under water in John Lilly’s immersion tank. Clearly medication adjustments had to be made and they continued to be made over and over again until my doc and I found a balance—the Golden Mean of medication, with me as a willing patient since I could no longer function at all without it. Medication meant that I didn’t have to go to hospital. Medication meant that I didn’t have to kill myself. Medication meant that therapy could now teach me how to live and, more importantly, how to love. I had been seeking love all my life but was too dazed by the blaze within me to see it, feel it or return it when given. Now, at long last I could.
Most Bipolars are not med-compliant and go off their meds when things get better. And then they veer into the vertiginous descent to hell once more and wind up in hospital/jail/homeless/dead. There is no virtue in my med compliance. I have tried stopping the meds a few times resulting in a reality so painful, that, humbled, I go crawling back to them. Life events have necessitated raising the dosage now and then. Like when my father was dying of cancer and later my mother and, just a year and a half ago, my brother.
Every so often I lament the loss of the raging fire of creativity and the burning desire for communion with God but now my thoughts are slowed down enough that I can sift through the embers and find little sparks which inspire poetry/prose/paintings/photographs/prayer. I find smoldering embers of religious feeling and have to work hard to fan the fire, it’s true. But now I can channel the creativity and religious feeling into works of art that I can be shared with others. Not torn up, destroyed or desecrated in a sudden descent into depression. Now I have to work harder to pray and have practiced meditation to find real religious feeling. Despite the loss of mystical states, I find myself more motivated to become a better person in God’s eyes without the former pseudo-spiritual feeling possessing me and my ego. Most importantly now I can love: people, God, and even myself at times.
Slowing down is not boring. It enables one to function/produce/LOVE. I have accomplished more in every facet of my life after being medicated and treated than I ever did before my breakdown. The same ideas are there but now I can use them as building blocks of art/faith/relationships. I think myself more materialistic and self-seeking than I was when I was totally out of my mind. Yes, it is true that I am, but paradoxically that makes me better able to try to give something back to the world, to love others and to pray harder to God. I have lost the effortlessness of it all and I have to pedal harder to get somewhere where treasured feelings are deeper, and more lasting. I could not love before—not myself, not others.
Sometimes I mourn the manias, until I am reminded of their undesirable attributes as they occasionally race through my mind scaling the protective walls of medication. Now I finally know them for what they are. Dangerous. Scary. Out of control. And I now know they will be followed by a crash. When I mourn the days of raging fire, others remind me that the middle road is far better. I remember my Sicilian grandfather whom I adored, preaching the “Middle Path,” which I think he got from reading Marcus Aurelius. And I wonder if he said this from his own experience of some sort of psychological problems he may have had. His daughter, my Mom, certainly had a mood disorder, if not Bipolar Disorder itself. Maybe he did, too.
My husband is my biggest reminder of the importance of medication. A clinical social worker, he knows well of what he speaks, the bulk of his knowledge coming from 23 years of living with, and loving me through my suicidal depressions and my florid manias. And these days, he is the man I adore. I am still constantly amazed that I am able to give love to a real other, another human being, however imperfectly. In the days when passion fanned the terrifying, tumultuous flames of phantasms of love built upon superficial desire, I could not. Nor did I think I would ever be able to love or be loved.
Medication, therapy and my husband have helped me stay sane and walk the middle road. And the middle road is the only path to take.
“Never, Never”
“It won’t happen again. Never. Never. Never. It’ll never happen again. No. No. No.”
The words to a song by Yusuf, better known as Cat Stevens, about a love affair gone awry. The words reverberate in my head repeatedly in true Bipolar style, as in true Aspie style, I listen to the song over and over and over and over again. My perseveration on the song fashions the words into a mantra, sending me full throttle into another state of consciousness, like the whirling dervishes of Istanbul who spin until they enter a mystical state. Since I no longer alter my consciousness with alcohol, cigarettes or recreational drugs (was too crazy to go that route), and since I am on anti-psychotic medications which keep me in reality, I have to use music, meditate and take refuge in nature to venture into my much-missed mystical states of being. The states today are washed out versions of the vibrant intensity I was accustomed to earlier in my life. But then, at age 28, my mind, never too strong to begin with, broke down and reality shattered into so many smithereens of glass. “It’s always a trade-off,” the experts say. But (and a “but” with a capital “B”) the psych meds hold me together and, most importantly of all, they allow me to love.
“It will never happen again. No. No. No.”
I can’t say that. My first major manic episode was ignited by a flaming crush at work that catapulted me into the fractionated world of psychosis for a very long time. Some thirty years later I am unsure just how far away that world is. It is not unusual for love to trigger the first manic episode in Bipolars, and I had another when I met the man who was to become my husband. This time the psychosis lost the war– because the love was reciprocated and nurturing– the most stable thing I had ever experienced. And (big “and”) because I was medicated. Though it felt like another break with reality was encroaching on my psyche, it never materialized and has not since.
But there have been close calls now and then. Writing my memoir of madness while working part-time, I would go to my job with all the raw feelings I was writing about whirling around inside me and, seemingly, outside me as well, as though stamped on my forehead. The memories and flashbacks bubbled up from deep inside like a lava flow of feelings. But no breakdown.
Mania is not the only state that flirts with psychosis. So, too, does the underbelly of the beast, depression. Loss of loved ones and caring for my dying mother brought me perilously close to the precipice again but extra medication kept me on the sane side of psychosis.
Even now any highly emotional experience (and being bipolar there are many) can shake the foundations of the self. Beholding great beauty in ecstatic encounters with nature, profound connections between thoughts and ideas, connecting deeply to another person—all these can send me reeling into space wondering if I can make it back to earth. These are all dangers I engage in somewhat recklessly for they make up the majestic magic and mystery of life. Friends and family I have helped keep my feet on the ground, but my husband is my real anchor to reality. Should something happen to Tom, well…
No. Unlike a dead love affair, I can’t say the descent into madness “will never happen again.” As I drift in and out of tantalizing trips into mania and try to flee the inevitable free fall into depression, I hang on for dear life and will not let go.
Enjoy the song sung soulfully by Cat Stevens, “MaybeYou’re Right…”
http://www.youtube.com/watch?v=BUnxkW4zeM4&feature=youtube_gdata_player
(Click http://www.independentauthornetwork.com/ellen-stockdale-wolfe.html for information on, and to purchase my Bipolar/Asperger’s memoir.)
WELCOME!!
Welcome to samples of my writing showcasing “Eye-locks and Other Fearsome Things.” “Eye-locks” is a Bipolar/Asperger’s memoir in narrative form that describes the triumph of love over mental illness. While not a lesson plan it documents my therapeutic journey to finding love against all odds. Useful for therapists, and for patients with Bipolar Disorder and/or Asperger’s Syndrome. A scholarly, autobiographical case history of my story was the showcase article in vol. 13 no. 1 of Psychoanalytic Inquiry in 1993.
For the full length narrative non-fictional account click http://www.independentauthornetwork.com/ellen-stockdale-wolfe.html for a short bio, a full description, and to purchase my book.
About MOONSIDE…
Learning to love is an ongoing process and I am writing posts on new lessons learned.
All the original abstract painting is posted to advocate for Bipolar Disorder and Asperger’s Syndrome– for it is those very handicaps that feed my art. The more realistic nature art is dedicated to raising consciousness for animals and the environment. All other art work is purely for your enjoyment.
Finally I have also posted selections from my nature writing and poetry. My nature essays were published in a small paper in upstate New York for a year and a half. The poems have appeared throughout my life, coming and going as they please.
This is an award free blog.
All work on this blog is under copyright and may not be used by anyone, for any purpose, without permission.
MOONSIDE 
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