At the Brink
This excerpt from Chapter 2 of my Biolar/Asperger’s memoir of finding love shows the beginnings of a psychotic breakdown.
I feel the electric light glowering at me. I look around the room in my basement apartment. The men following me. The phone call from Yvonne. Nothing is making sense. Obeah island witchcraft? Danielle’s thing. Danielle is the island woman. The room spins again. I feel like someone is watching me. I feel someone here— looking in the window.
Jumpy thoughts. Buzzing mind. I know the signs. Feeling the victim of a plot. Fear of being followed— of being watched— of evil spells coming out of an inanimate object— panic— magical thinking— paranoid ideation. I have made the break with reality. I have entered the deep, dark hollows of the paranoid’s world. Terror! I pick up the phone and dial. 242-6637.
“Hello, Dr.’s office.”
“Hello, may I please speak to Dr. Agostinucci?”
“Hold on a minute.”
“Hello, this is Dr. Agustinucci.”
“Hello, Joey. It’s Ellen. I’ve got to talk to you. Can you talk?”
“Yeah, you got me at a good time. I’m just in between sessions. What’s up?”
“Joey, I don’t know. I’m flipping out. I can’t sleep. I called Danielle last night and told her.”
“You told her what?”
“I told her what I told you— that I loved her. And then she told me that she wasn’t ‘that way’. And then . . . ” I start crying. “Oh, Joey, I’m so scared. I mean it means that all along I couldn’t see reality. I’ve been living in this fantasy world all this time, thinking Danielle’s in love with me and gay, and I’ve been drinking and drinking because I haven’t been able to sleep. And then today I started thinking that spells were coming out of the elephant that Sundra gave me. So I took the bus up to Columbia to throw it away. And then I thought two men were following me home. And Yvonne called me up from work and, Joey, I think it’s all a plot . . . ”
“Wait a minute, calm down. You’re all upset!”
I continue. “Yvonne and Danielle are in cahoots. Maybe they’re both testing me to see if I’m gay. Joey, I don’t know how I’m going to go to work tomorrow and face Danielle and face Yvonne . . . ”
“Calm down. One thing at a time. You’re overwrought.”
“But, Joey, I don’t know what is real and what’s not real anymore. I can’t sleep and I can’t stop crying.”
“Okay, look, I’ll give you a prescription. I’ll call in the prescription to the pharmacy. They’re probably still open. I’ll have it delivered. Just give me the name of the pharmacy you use— the one nearest you.”
“Uh . . . I’ve got to look it up— just a second . . .” I run to the bathroom to find a prescription bottle.
“Joey, it’s Rexall on 76th Street. The phone number is 663-7684.”
“Okay, look, I’m going to give you a prescription for Valium, 2 mgs. Take one pill and see what happens. If you still feel very anxious, take two.”
“Okay.”
“Listen, I think you should go to work tomorrow.”
“Joey how can I? I keep bursting into tears.”
“Look, the Valium will help calm you. It’ll be a whole lot worse if you stay home. I suggest you call the Health Service first thing in the morning and make an appointment to see someone. Tell them it’s an emergency.”
“Okay, Joey, I guess you were right. You always told me I needed therapy and I always told you that I felt I’d go to pieces one day and now it seems that day has come.”
“Listen, you’re extremely upset. Take the Valium and try to get some sleep. If you need me you know where to reach me. And if things really get bad you know you can always go over to the emergency room in Lenox Hill.”
“Yeah, that’s right, I can always go there.”
“Listen, when I call in the prescription I’ll arrange for them to deliver it, too, so you don’t have to do anything. You have enough money to pay for it?”
“I don’t know. Let me see. Yeah, I think I do,” I say as I scramble through my purse.
“Okay, look, are you going to be able to answer the door? Or are you still scared of those men?”
“No, the doorbell only rang twice. Whoever it was is long gone. I’m not scared of that anymore.”
“Good. So just wait for the delivery. I’ll tell them to speed it up.”
“Thanks a lot, Joey! Thanks for everything!”
“Okay, take care, get some rest. I’ll call you tomorrow to see how you are.”
“Okay, thanks a lot, Joey, bye.”
“Bye, Hon.”
For information on the memoir see: http://www.amazon.com/Eye-locks-Other-Fearsome-Things-ebook/dp/B007TOOF56/ref=sr_1_1?s=digital-text&ie=UTF8&qid=1345051643&sr=1-1&keywords=eye-locks The book is also available on Barnes & Noble Nook, iBooks and Smashwords.
Diamonds in the Marsh
Scintillating snow melts
and fills a pre-Spring marsh
full of sparkling jewels
where bedazzled frogs
soon will hide.
I carelessly cut my finger while preparing lunch. For several days thereafter I found myself scrutinizing that finger under bright light in order to keep it clean and surgically redressed for healing. And in the process it occurred to me that the distinctively mapped form of my fingerprint evokes similar patterns seen elsewhere in nature.
I’ve seen them in the formative grain of new-sawn oak or a knotty pine board, stemming from the very concentric rings that enliven any tree. I’ve seen them in the pattern of water finding its drain, in the stone-thrown ripples on the surface of a pond, in the conforming ridges of a seashell.
I’ve seen them in radar depictions of isobaric pressures or a gathering storm, in the topographical contours of land elevations or sea depths. I’ve seen them in the illustrations of concentric arcs of light waves and sound waves, when I was…
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Darkness Falls
Darkness falls
shoving my precious blues and violets
down the black hole of depression.
I no longer remember
how to smile
or create
or spar.
I wish to disappear
into the darkness
until the light returns.
The Wooly Bully
I ask you– do I look like a bully?
My winter’s growth will soon be shorn
and I will be the “bullied.”
Now or Never
Fri., October 28, 1977
I hardly sleep at all. Ever since yesterday I am totally confused. I am no longer sure that Danielle is interested. Danielle talks again to the department head. She says something about love in a very loud voice to catch my attention. I am so upset and nervous that I don’t hear what she is saying. All I can make out are individual words: “she . . . love . . . candy.” Then when I walk by her desk she gives me a big smile. I am panicked. I don’t know what she is smiling about. Was I supposed to hear what she was saying? Did I miss my cues? I am somewhat cold and distant because of her statement yesterday. I ignore Danielle and she runs out of the office and goes to the ladies room. I follow her in there and see she is crying. “What is wrong?” I ask, wanting to throw my arms around her and comfort her but I don’t have the courage to do it.
Danielle says, “Ellen, please just leave me alone.”
I am panicked. I go over to the department head in desperation and ask, “What is wrong with Danielle? She’s in the ladies room crying.”
Sheila says, “Oh, she’s upset because they’re reducing the retirement benefits.”
I think she is lying. I don’t know what is going on. I tell Yvonne I think people are lying to me. Everyone is all upset. I overhear Dr. Lencek, the medical cataloguer who trained as a psychiatrist, say that I am a troublemaker and a flirt. I want to say I am not. I am desperate. I leave a note on Danielle’s desk when she is not there saying, “Don’t you know I can’t hear or see when I am so nervous? I am sorry.” I hear Yvonne say, “It sounds like a heart-felt apology.” But Danielle shows no response. I feel rejected again and go home in a panic. Now I have really made a mess of things. Everyone seems to know what is going on except me. I have made a scene with the head of the department. I have hurt Danielle’s feelings. They think I am playing games and hurting Danielle’s feelings. Am I? I don’t know. I don’t know why I turn so cold and hard at times. Yvonne, Dr. Lencek, Nina— they all seem to want me to love Danielle. I have to do something. No sleep now.
I close the diary after reading Friday’s entry. Joey was so negative about the whole thing I didn’t dare tell him all this and I certainly didn’t dare ask him what I should do. Why hadn’t I been able to explain the whole story to Joey?
YOU WERE TOO NERVOUS. YOU COULDN’T THINK STRAIGHT. JOEY JUST DOESN’T UNDERSTAND THIS KIND OF THING. YOU HAVE REJECTED DANIELLE A FEW TIMES NOW. AND NOW SHE IS REALLY GOING TO THINK YOU ARE PLAYING GAMES. YOU MADE DANIELLE CRY. DANIELLE WASN’T CRYING ABOUT THE RETIREMENT BENEFITS. GET REAL. YOU HAVE TO DO SOMETHING AND YOU HAVE TO DO IT NOW. IT’S CLEAR YOU HAVE TO FORCE YOURSELF TO COME CLEAN TO DANIELLE. YOU HAVE TO PROVE TO DANIELLE YOU’RE NOT PLAYING GAMES. YOU HAVE TO SHOW HER YOU WERE JUST SCARED— THAT YOU DIDN’T WANT TO REJECT HER— THAT YOU ARE INTERESTED. YOU HAVE TO TELL DANIELLE THE TRUTH. BLUNTLY. OVER THE PHONE. TODAY IS SUNDAY. DANIELLE WON’T BE IN TOMORROW. SHE’S TAKING A VACATION DAY AND TUESDAY IS ELECTION DAY. YOU WON’T SEE HER UNTIL WEDNESDAY. THAT’S TOO LONG TO WAIT. TONIGHT WOULD BE THE PERFECT NIGHT TO DO IT. YOU HAVE TO DO IT. THERE IS NO OTHER WAY. DO YOU WANT TO LOSE HER FOREVER? REMEMBER THAT LOOK ON HER FACE WHEN SHE CAME OVER TO YOU AFTER HER VACATION? THIS IS REAL LOVE AND MAYBE YOUR ONE AND ONLY CHANCE.
I pour myself a Scotch. Then another and another. I take out my phone book. I am still shaking. I dial Danielle’s number, then before it rings, I hang up. I drink the last of my third drink and dial again.
Danielle answers.
***********
This excerpt from Chapter 2 of my Bipolar/Asperger’s memoir illustrates a manic love and an Asperger’s difficulty with social cues. For full information see:
Also available on iBooks (iTunes), Barnes and Noble Nook and Smashwords.
A Glimpse into the Infinite
How many bacteria are on the back of your hand?
How insects are in the universe beneath our feet
or above our heads?
How many grains of sand lie on the beaches of the earth?
How many waves float upon the earth’s seas?
How many bubbles rise up in all the water on our planet?
How many planets, stars and galaxies lie within the universe?
How many universes are suggested by the Multiverse theory?
What seems infinite is finite.
The paradox…
We have a perception of the Infinite though we ourselves are finite.
We have a conception of the Infinite through our perception of the finite.
The spark of the Infinite lies within our finite bodies.
It is called the Soul.
“For the Truth Shall Set Ye Free”
I first remember things going wrong at age 5.
I am standing in the corner of the bedroom with my mother beside my brother’s crib. She is telling me I am cold and selfish, like my father’s mother whom she hates. I now think she hates me. She tells me I will wind up all alone.
It is just after the births of my brother and sister, only 11 months apart, and my 25-year-old mother, is totally overwhelmed. My brother is the apple of her eye, with Mom’s dark coloring and the looks of her adored Sicilian born-father. My sister is Daddy’s little girl. I remember feeling all alone, and being cold and hard at that age, confiding only in my stuffed lion, Leo. Many, many years later I come to see this cold, hard me as a dissociated self. Many years later my mother apologizes to me. And I apologize to her.
I set out on a life-long struggle to be different from my father’s mother, doing everything to try to be warm and loving like my mother’s Italian family. I fail. With acute stage fright most of the time, I cannot initiate a smile, nor greet people. The most basic social skills are lost to me, much to the chagrin of my parents. Often I cannot respond to people. At times I cannot organize my thoughts well enough to speak. I feel evil and selfish. I want to fit in and can’t. I want to pass for normal and don’t. I want to have a family and never will. I want to find love and it will take me decades to do so.
The “defensive personality” serves me well, covering up many, but not all, of my autistic symptoms. I live dissociated from many of my numerous fears.
My story begins when I break down. My fiancé, Sundra, goes back to Sri Lanka. I change library jobs from a relatively comfortable clerical position in a small library to a position cataloging art books in a huge office. The new job is in a giant room with three different departments and about 40 employees of all ages and ethnicities. There are no cubicles or dividers so everyone can see and hear everyone else. It is as gossip-ridden as a small town. There is no privacy and there are fluorescent lights. It is all too much. But it is here I meet Danielle who is to change my life forever and, later, Jimmy, who becomes my husband. My journey begins when my autistic shell breaks, at age 28, when the “superficial personality”, the dissociated me, falls apart. I seek therapy and am diagnosed with Bipolar Disorder. Not until thirty years later do I find out I have Asperger’s Syndrome, a mild form of Autistic Spectrum Disorder, as well.
I write my story as a message of hope to all those who are as lost as I was, to those who think, as I did, that they cannot find love. I open my heart to help others avoid the suffering I went through and caused. I nearly lost my job and my mind pursuing love. I hurt other people. I could have been seen as a stalker due to my typical Aspie approach to a romantic interest. Love threw me over the brink of sanity and made me psychotic at times. I didn’t know I was Bipolar and my psychiatrist didn’t know I had Asperger’s syndrome.
Finally, I write this book to psychiatrists and other therapists that they may understand their patients who have the same issues and delusions.
From the Prologue to Eye-locks and Other Fearsome Things:
Full Moon Blues
Lunacy prevails
The foundations of daily life are crumbling
It is all “Maya”
a dream we are living thinking it is reality
We have no choice but to go on
All that matters is love
and God is Love.
Blind Attraction
Sometimes
The blind can see
and the seeing are blind.
Attraction goes beyond
Seeing
and becomes
Sensing.
Distortions of I
I was writing to a friend recently about my own distorted view of the world at present– upset about a very ill, very dear aunt in hospital, the last elder by blood, and also about a colleague/friend in hospital. This all comes on top of my husband’s mental health program closing and his possible reassignment to work with ex-cons. I don’t do well in hospitals, being totally OCD about germs, contamination, sickness and vomiting. With no protective walls thanks to a breakdown years ago, I feel terror-stricken and ill as soon as I walk in the door of a hospital. As for the ex-cons, my husband, Tom, was attacked once by an angry client, so my fear of him working with ex-cons with anger issues is not totally unjustified. In my email to my friend I didn’t go into these details but here is what he wrote back. (Blacky and Betty are his adopted dogs):
“Blacky and Betty don’t know how good they have it. They are detached from normal human sufferings. They are truly positive, focusing only on good things and are grateful if I pet them while handing them a treat. They love the snow and the cold doesn’t bother them. As long as ex-cons show them love, they don’t care. They would love to cuddle with your friend and aunt and wish them well. They would love you and Tom to take them out to play.
Love from, V,B and B
It’s hard being human.”
In thinking over what he wrote, I decided that dogs (and most, if not all, animals) live in the present. Humans, however, are hampered by experiences from their past (sometimes trauma), and fears about the future, based on their past traumas. For example, my obsession about vomiting began with an alcoholic father who would come home drunk and become ill, happening enough times to be etched on my memory decades later. Knowing this does not make it better—nor does it make it go away. Neither does knowing the name for this illness, “emetephobia.”
It is true that animals also experience trauma but somehow they seem better able to unlearn trauma than humans. Animals may fear death when they are surrounded by it in slaughterhouses, but unlike humans, they don’t seem to foresee death scenarios in everyday life.
“Still thou are blest, compar’d wi’ me!
The present only toucheth thee:
But och! I backward cast my e’e,
On prospects drear!
An’ forward, tho’ I canna see,
I guess an’ fear!”
from “To a Mouse” by Scotland’s favorite poet, Robert Burns, 1759-1796
I have said many times, my dogs were my best teachers. I will try to take a page from their book on love, think of how they would act, and draw strength from their lessons. “Perfect love cast out fear.” My love is far from perfect, for I am full of fear. But I can choose to focus on my aunt, my friend, my husband and “be” with them totally and lovingly as my canine companions, Ko-Ko and Duchie, were every day of their lives on this earth.
Iced Reflections
The fluid, monochromatic, abstract form of the ice
Over the intricate, colored lattice work of the reflections of trees
Water in its various states each with its mysterious qualities.
The Microcosm and the Macrocosm
Grace flows through the limbs of a tree reaching skyward, its intricate patterns of branches pleasing the eye– just as grace flows through the orderly, spikey branches of frost on a window.
Patterns repeated ad infinitum in all creation.
A microcosm of the macrocosm and a macrocosm of the microcosm.
God’s breath breathes through all.
The Beloved
For a very long time when I was alone and had no hope. Being Bipolar and having Asperger’s, I thought I would never find love. I had lost it many times. My vision of the future was totally black and bleak.
Years later, at age 35, I found love again. This time it felt right though I was filled with much uncertainty at the time. Almost 24 years have past and it seems righter than ever. We have nudged each other to grow and we have grown. There is still a future to face, now of old age. But every day can bring a new and unanticipated revelation. Recently, and on more than one occasion, I have looked into the eyes of my beloved and seen a tiny glimpse of The Beloved. An epiphany of sorts. For love of a human is but a taste of the love of God.
In the video below, Cat Stevens, now known as Yusuf, sings of earthly love and The Divine. For those of you who don’t know, after starting out as a folk/rock star, he found Islam and that radically changed his life. He gave up fame and fortune to pursue God. In the end, he found his way back to music to use it to witness The Beloved. And that is the title of the song below.
Heart to Heart
“Love cannot be had for the asking; it comes only as a gift from the heart of another”
~ Paramahansa Yogananda
Stars in the Eyes
When I was a little girl of seven, I swallowed the “Prince Charming” myth whole. I cried watching the movie Sleeping Beauty, because I wanted my own prince to come. Then adolescence happened and I found myself a wallflower– not only at socials but in everyday life as well. Few friends and no dates. I had one good friend who was best friends with someone else which somehow negated our relationship. I was painfully shy and full of anxieties. College was a little better. I had my first boyfriend, a run of relationships that mostly went nowhere fast and, again, few friends. High school peers were marrying off. My brief brush with marriage to a Sri Lankan ended when he went back home, promising to return. He never did.
And then it happened, totally out of the blue and beyond my control, I fell in love with an older, West Indian woman at work. I became obsessed with a relationship that was never to be and nearly lost my job in the process. Unable to handle such feelings on so many levels, I went free fall into a downward spiral of depression and psychosis, commonly called a nervous breakdown. It lasted for years. But I still believed in love and Prince Charming (in this case, “Queen” Charming). For years I lived in the netherworld of mental illness, locked in isolation. I explored being gay but like my college relationships, all failed. I will never know the truth of all that happened between the West Indian woman and me. After testing many medications before arriving at the right cocktail, years of therapy taught me about my own fears of love and how to love. I was diagnosed Bipolar but treated as if I had Asperger’s as well, since I could not decipher what in hell’s name was going on in social relationships. I was not officially diagnosed with an Autism Spectrum Disorder until some 30 years later.
One day I grew strong enough to stand up to life. For the first time, I could think of what I wanted in a person and look for it. After all I had been through, I still believed in the “Prince Charming” myth. But he never found me. I found him. He didn’t sweep off my feet. I swept him into my arms. I understood him because he was Aspie like me. I knew if I did not make a move he never would. So, with heart-pounding fear, I asked him out and then he asked me out, and we bumbled along and married 4 years later, after I basically said “now or never.”
We remain happily married almost 24 years later. And so came “happily ever after.” But not exactly as I expected. For one thing there were fights which I hated. I had to learn that this was normal. Then, when my best friend died a few months after my father died, both of cancer, it hit me for the first time. There was no “happily ever after.” I realized that marriage either ended in divorce or death. Both dire. And that one of us was going to lose the other except in the unlikely event we both died together. How could I have been so stupid and not have seen this before??
Today my love for my husband runs deep and I realize I am closer to him than to any other human I have ever loved. I live in terror of something happening to him. As we both approach old age every good moment becomes a treasure I try to engrave on my memory. My husband has blossomed into an empathic, caring clinical social worker. He now expresses his deep affection towards me. Even I, who had a hard time recognizing love, can see this. He still teases me relentlessly. This is his way of showing love. I understand that because my father was the same way. But my husband delights in getting away with teasing me. “What joy!” he said one morning, as he played some mischief on me. “I love this “love thing’!” he said. I never thought he would say that or turn out to be so affectionate and loving. Just as I never thought I would find love. And when I looked at him with love in my heart that morning after the teasing stopped, he said, “What?” We still have trouble interpreting expressions and are still shy of eye contact even with each other. I said what I had read long ago that a child had written. When two people in love look at each other, stars come out of their eyes. A wonderful image that comes as close to “happily ever after” as one can get.
MOONSIDE 
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